Members

Since the beginning of the pandemic in March 2020, our community is struggling with lack of scientific information for patients. There was a lot of misinformation among the general public and because of that the panic increased. Although the Ministry of Health regularly published information to...
Since the beginning of the pandemic in March 2020, our community is struggling with lack of scientific information for patients. There was a lot of misinformation among the general public and because of that the panic increased. Although the Ministry of Health regularly published information to...
Epilepsy Support Association Uganda exists to mobilize, organize, support, skill, care, and advocate for the rights of people with epilepsy to live a dignified life. In October 2020, ESAU with the support of the IAPO COVID-19 Response Activity Grant, embarked on raising awareness to its members on...
Action Group for Health, Human Rights and HIV/AIDS Uganda (AGHA) is a health and human rights advocacy organization in Uganda dedicated to raising awareness of human rights aspects of health, quality of health and health care for all Ugandans. With support of IAPO’s COVID-19 grant, AGHA researched...
We are pleased to announce the following five candidates are up for election to the IAPO Governing Board. All members of IAPO are invited to vote for their preferred candidate. Further information on this can be found on our governance page .
Article by Daniela Shikova, General Manager at FindMeCure Foundation “85% of clinical trials fail to recruit and retain enough patients in order to meet their enrollment timeline” – a number which we see quite often in analyses, publications, or events presentations within the clinical research...
IAPO is a partner in the exciting Medicines We Can Trust Campaign - a global coalition to raise awareness of and call for action on safe, quality medicines. . As part of the campaign, we are looking for compelling stories that showcase the human impact of poor-quality medicines. Poor-quality...
La agenda sobre la seguridad global del paciente continúa cobrando impulso con la reunión de los profesionales de salud que tuvo lugar en Jeddah, Arabia Saudita el 2 y 3 de marzo 2019, dentro de marco de la 4ta Cumbre Ministerial Mundial sobre la Seguridad del Paciente. El énfasis de la cumbre este...
Sexual intimacy challenges can be a difficult topic to talk about, even though common for people with and without chronic conditions. To get the conversation going about sex and multiple sclerosis (MS), MS International Federation (MSIF) – an IAPO member – has recently launched an animation looking...
We welcome Building Lives Foundation, El Salvador, to IAPO starting from January 2019. They have answered a few questions about their work, why they are involved in patient advocacy work and their thoughts and expectations as they join our global network. Why are you involved in the work that you...

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